April 04,2008
Hey everyone! I know it’s been forever since I’ve blogged but there really hasn’t been much going on lately. Avery has seen his dietician since the last blog and I’m happy to report that he’s gained 2 lbs since eating more solids. Now I know it’s only 2 lbs but that’s huge for Avery.
We’re still in the process of getting him enrolled for school next year. We have a meeting on the 22nd for the district to have him assessed and determine what kind of goals we want to set for Avery. I also have to get all of his medical records together and as much info on CFC as I can to give them. I want to make sure his teachers are as educated on his condition as I am.
We finally get to start therapy again next week. The therapy place we
go to only has openings for occupational therapy right now though.
We have to wait for an opening to come up before he can get physical and speech therapy too. We had a slot for physical therapy before but lost it since it took so long to get the medicaid back from Jeremy’s last raise at work. We also get home health care now and can have a nurse come out and give me a break during the day. Avery doesn’t require a lot of medical care during the day but after 3 yrs of mommy being by his side he won’t let me leave the room without crying. That’s definitely going to be a problem for his teacher next year.
We added the photo album to the home page so check it out if you haven’t already. I’ll try to keep it updated with plenty of pictures of Avery! I’m trying to get Jeremy to add a feature where you can register your e-mail address and it will automatically notify you when I post a new blog. That way I don’t have to keep sending the e-mails out myself.
I have a friend who is riding in the upcoming BP MS150. He’s looking for donations so if you have a little to spare please consider donating. All donations are tax deductible. Here’s the link for donations:
http://www.ms150.org/ms150/donate/donate.cfm?id=216667
For anyone interested my e-mail address has changed. The new address is brandy@averysjourney.org
Please update your address book : )
Have a great weekend!!